Better Records Together

Better Records Together calls for urgent improvements to support people accessing their care records. This campaign follows two years of engagement and research into how services can better support people to access their records and understand their history.

To help tackle issues and encourage systemic change, the ICO has created a suite of practical resources including new standards for organisations, clear guidance for people accessing their records, and videos and case studies amplifying the voices of people with care experience.

These new resources are vital in ensuring that care experienced people can access their records in a supported and sensitive way. We encourage everyone to join the collective effort in empowering people to exercise their rights and access their records.

Standards for Better Records

See the new set of good practice standards created by the ICO for organisations who hold care records. These aim to provide clarity, drive change and raise the standard so that people can access their records in a timely and supported way.

Short guide for people with care experience

This bitesize guide covers all the key information around accessing care records, rights under data protection and how to raise a complaint. The guide reflects what care experienced people said was most important about accessing their records.

Videos and case studies

Gain a deeper understanding of how it feels for people to access their records. These videos and case studies highlight the experience of people who have encountered barriers in accessing their care records.

Read more

Breaking the Mould

Future Pathways supported Fiona with her sculpture. Since then, Fiona has created workshops to help others find healing through creativity.

Get involved in 2026

We are looking for people to join our lived experience group and our Leadership Team. Find out more about how you can get involved.

Register with us today

It’s easy to get in touch – either by phone, email, or you can fill in this simple form to register your interest or find out more.